Understanding the Daily “Feels” of Chiari & CCI: How Lifestyle & Weather Impact Symptoms

When Every Day Feels Different: Navigating the Shifts of Chiari & CCI

If you're living with Chiari Malformation or Craniocervical Instability (CCI), then you know—no two days feel exactly the same. One moment, you're managing. The next, it’s like the floor dropped out from under you. And often, the why behind those shifts isn’t always clear… until we learn to notice the subtle (and not-so-subtle) influences around us.

Whether it’s the weather, your posture, stress levels, or even the energy of the space you're in—these external factors can play a massive role in your internal experience. Knowing this doesn’t just bring awareness. It brings empowerment. And that empowerment can change the way you mentally—and emotionally—navigate your day.

Here are a few gentle reminders to support your daily “feels”:

1. Start Your Day with Intention
Before your feet even hit the ground, take a moment. Breathe deeply. Let your body arrive gently into the day. I often use a specific lying position during this morning breathwork that helps reset and ground my nervous system. It’s free, restorative, and easy to do from bed—reach out if you’d like to learn how.

2. Mind Your Posture—Especially with Technology
We live in a digital world. But that slight downward tilt of your head toward your phone or laptop? It’s not so slight when it comes to your symptoms. It can snowball fast. Honor your body by lifting your devices or using supportive props to protect your neck and alignment.

3. Weather Isn’t Just a Forecast—It’s a Trigger
Barometric pressure changes, humidity shifts, and even upcoming storms can dramatically affect those with Chiari and CCI. Personally, I often feel the effects of a tropical depression a day or two before it even arrives. If you’ve ever felt “off” without knowing why, the skies above may be holding a clue.

Living with a condition that can shift so rapidly is no small thing—but you’re not alone. The more we understand what influences our symptoms, the more prepared, compassionate, and empowered we become.

You are strong. You are not “crazy.” You are doing an incredible job navigating something most people can’t see.

And that deserves honor, grace, and support—every single day.